Hello! I have taken on the challenge of participating in the 2010 Saskatchewan Marathon in honour of my little niece Alivia and to support the Canadian Cystic Fibrosis Foundation (CCFF), as my small, personal effort to help the Canadian CF Foundation raise funds for investment in vital programs to support research, care and education in their fight against cystic fibrosis.
On Sunday May 30, 2010, I will start (and hopefully finish!) the Saskatchewan Marathon. If you would like to support me and choose to make a donation, I thank you and pass along the sincere thanks of Alivia's parents, Elaine and Damian Huffer, as well as the entire Canadian CF Foundation.
If you would like to make an online donation to the CCFF, just click Donate Now and indicate that you would like to make a gift in Honour of Alivia Huffer. Donations can also be made to the CCFF by mail or by fax.
For more information about cystic fibrosis, please visit: http://www.cysticfibrosis.ca
Cystic fibrosis (CF) is the most common, fatal genetic disease affecting young Canadians. About one in every 3,600 children born in Canada has cystic fibrosis (~70,000 people worldwide). CF is a multi-organ disease, primarily affecting the lungs and digestive system.
A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and causes severe breathing problems. It may be difficult to clear bacteria from the lungs, leading to cycles of infection and inflammation, which damage the delicate lung tissues. Thick mucus also blocks the ducts of the pancreas and prevents natural enzymes from reaching the intestines and helping the body break down and absorb food. People with CF must consume a large amount of artificial enzyme with every meal and snack, to help digest and absorb adequate nutrition from food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Thanks to everyone for your support!!